{"id":5922,"date":"2022-09-29T05:51:12","date_gmt":"2022-09-29T03:51:12","guid":{"rendered":"http:\/\/www.atopika.org\/?p=5922"},"modified":"2022-09-29T06:41:59","modified_gmt":"2022-09-29T04:41:59","slug":"atopic-dermatitis-caregivers-academy","status":"publish","type":"post","link":"https:\/\/www.atopika.org\/hr\/2022\/09\/29\/atopic-dermatitis-caregivers-academy\/","title":{"rendered":"Atopic Dermatitis Caregivers Academy"},"content":{"rendered":"\t\t
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\u00a0GAAPP<\/strong> je mednarodna organizacija, ki podpira in opolnomo\u010da\u00a0 bolnike z alergijami, dihalnimi in atopijskimi boleznimi. Nudi celostno podporo z osredoto\u010danjem na za\u0161\u010dito\u00a0 pravic bolnikov kot tudi njihovih svojcev. Opozarja in vztrajanja pri vlogi in dol\u017enosti vlade, zdravstvenih delavcev in splo\u0161ne javnosti za izbolj\u0161anje kvalitete \u017eivljenja bolnikov z atopijskim dermatitisom.\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Komu je namenjena akademija - Atopic dermatitis Caregivers Academy <\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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V lu\u010di svetovnega dneva atopijskega dermatitisa je GAAPP predstavil akademijo\u00a0 –\u00a0\u00a0Atopic Dermatitis Caregivers Academy. <\/span>Akademija je <\/span>namenjena predvsem star\u0161em otrok z atopijskim dermatitisom.\u00a0 V Zavodu Atopika smo bili izredno ponosni, da so v akademijo \u017eeleli vklju\u010diti tudi na\u0161e znanje in izku\u0161nje. Povabili so nas namre\u010d k sodelovanju na temo izbolj\u0161anja kvalitete spanja.\u00a0 Na spodnjih povezavah lahko dostopate\u00a0 do\u00a0 serije videoposnetkov, orodij in virov za krepitev zmogljivosti za izobra\u017eevanje svojcev ki se soo\u010dajo z diagnozo atopijskega dermatitisa.<\/a><\/p>

GAAPP je v projektu sodeloval z svojci bolnikov, zagovorniki pacientov in razli\u010dnimi strokovnjaki, da bi predstavil kratke videoposnetke (10 minut). Posnetki pokrivajo najpomembnej\u0161e vidike negovanja osebe, ki \u017eivi z atopijskim dermatitisom. Upamo, da bodo ti videoposnetki nudili smernice negovalcem po vsem svetu in pomagali zagotoviti nujno potrebne informacije o tem, kako se soo\u010diti z novo diagnozo – atopijski dermatitis.\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Kak\u0161ne so teme akademije - Atopic dermatitis Caregivers Academy
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VZPODBUDA ZA NAJTE\u017dJE \u010cASE – Tonya Winders<\/strong>, \u010dudovita \u017eenska in mama \u0161tevilnih otrok z atopijskim dermatitisom, direktorica in predsednica, Allergy & Asthma Network<\/span><\/a> & Global Allergy & Airways Patient Platform<\/span><\/a>. Tonya\u00a0nam predstavi svojo te\u017eko pot in razlo\u017ei, kako je spodbujala svoje najdra\u017eje v te\u017ekih \u010dasih.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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MO\u017dNOSTI ZDRAVLJENJA – Dr. Peter Lio MD<\/strong>, FAAD. Dr. Lio pojasnjuje razli\u010dne vrste zdravljenja atopijskega dermatitisa. V predavanju pojasni tudi prednosti ter slabosti obstoje\u010dih zdravljenj. Vsekakor vredno ogleda in opolnomo\u010denja. Povezava do predavanja je tukaj.\u00a0<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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ATOPIJSKI DERMATITIS IN SPANJE – Tina Mesari\u010d <\/strong>iz Zavoda Atopika. Bolnica s te\u017eko obliko atopijskega dermatitisa in mama otroka z isto boleznijo\u00a0 govori o problematiki nespe\u010dnosti in poda nasvete kako izbolj\u0161ati kvaliteto spanja celotne dru\u017eine. Povezava do predavanja je tukaj.\u00a0<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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\u0160OLA IN SOCIALNO \u017dIVLJENJE –\u00a0<\/strong>Vildana Mujkic<\/strong> iz Zdru\u017eenja bolnikov za alergije, astmo in atopijski dermatitis Bosna in Hercegovina. Vildana nam predstavi \u0161tevilne nasvete, kako se soo\u010diti z razli\u010dnimi situacijami v \u0161oli in drugih socialnih situacijah. Predstavi tudi svojo zgodbo kot mama otroka z atopijskim\u00a0 dermatitisom. Povezava do predavanja je tukaj.\u00a0<\/a><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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ATOPIJSKI DERMATITIS IN TE\u017dAVE Z INTIMO – Cheryl Talent<\/b> iz Eczema Association of Australasia Inc<\/span><\/a>. Cheryl govori o izzivih pri spolnosti bolnikov z atopijskim dermatitisom in svetuje, kako jih premagati. Tema o kateri se ne govori, \u010deprav je veliko bolnikov in njihovih intimnih partnerjev zaradi atopijskega dermatitisa v veliki stiski. Povezava do predavanja je tukaj.\u00a0<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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ATOPIJSKI DERMATITIS IN STIGMA – Chus Gigosos<\/strong> iz \u0161panske organizacije za atopijski dermatitis (AADA). Chus pripoveduje svojo zgodbo, kot mama h\u010derke z atopijskim dermatititsom.\u00a0 Svetuje kako premagati stigmo zaradi katere bolniki trpijo in kako se soo\u010diti z \u017eivljenjskimi izzivi bolezni. Video je v \u0161pan\u0161\u010dini z angle\u0161kimi podnapisi, ki se lahko aktivirajo preko YouTube player. Povezava do predavanja je tukaj.\u00a0<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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KAKO DO PRAVE DIAGNOZE\u00a0 – Christine Pham-Cutaran<\/strong>, mamica otroka z atopijskim dermatitisom iz Parents for Eczema Research<\/span><\/a>. Christine pojasnjuje svojo pot in dragocene izku\u0161nje kako do prave diagnoze. Vabljeni k ogledu.\u00a0 Povezava do predavanja je tukaj.\u00a0<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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Zakaj se je pomembno vklju\u010diti v izobra\u017eevanja? <\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Opolnomo\u010denje je klju\u010dnega pomena za vse kroni\u010dne bolnike. Kroni\u010dni bolniki opravljamo ve\u010d kot 95% nege sami, zato je pomembno, da poznamo na\u0161o bolezen in na\u0161e telo. Pomembno je, da se znamo z boleznijo uspe\u0161no soo\u010diti in jo predstaviti v javnosti, da zmanj\u0161amo mo\u017enosti stigmatizacije, diskriminacije in marginalizacije. Tukaj smo za vas, da skupaj prehodimo najte\u017eje korake in gradimo bolj\u0161o prihodnost za na\u0161e najmlaj\u0161e bolnike.\u00a0 Atopic Dermatitis Caregivers Academy<\/strong> je vsekakor vredna ogleda.\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

GAAPP je mednarodna organizacija, ki podpira in opolnomo\u010da\u00a0 bolnike z alergijami, dihalnimi in atopijskimi boleznimi. Nudi celostno podporo z osredoto\u010danjem na za\u0161\u010dito\u00a0 pravic bolnikov kot tudi njihovih svojcev. Opozarja in vztrajanja pri vlogi in dol\u017enosti vlade, zdravstvenih delavcev in splo\u0161ne javnosti za izbolj\u0161anje kvalitete \u017eivljenja bolnikov z atopijskim dermatitisom. Komu je namenjena akademija – Atopic 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Mesari\u010d\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Napisao\/la\" \/>\n\t<meta name=\"twitter:data1\" content=\"Tina Mesari\u010d\" \/>\n\t<meta name=\"twitter:label2\" content=\"Procijenjeno vrijeme \u010ditanja\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minuta\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.atopika.org\\\/hr\\\/2022\\\/09\\\/29\\\/atopic-dermatitis-caregivers-academy\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.atopika.org\\\/hr\\\/2022\\\/09\\\/29\\\/atopic-dermatitis-caregivers-academy\\\/\"},\"author\":{\"name\":\"Tina Mesari\u010d\",\"@id\":\"https:\\\/\\\/www.atopika.org\\\/hr\\\/#\\\/schema\\\/person\\\/49c1087a289bda3e5fceeba66fa27376\"},\"headline\":\"Atopic Dermatitis Caregivers 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