{"id":3882,"date":"2021-01-09T13:56:27","date_gmt":"2021-01-09T12:56:27","guid":{"rendered":"http:\/\/www.atopika.org\/?p=3882"},"modified":"2021-01-28T12:33:15","modified_gmt":"2021-01-28T11:33:15","slug":"projekt-beneath-the-skin-veronika","status":"publish","type":"post","link":"https:\/\/www.atopika.org\/hr\/2021\/01\/09\/projekt-beneath-the-skin-veronika\/","title":{"rendered":"Projekt Beneath the skin – Veronika"},"content":{"rendered":"\t\t
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V Zavodu Atopika smo skupaj s fotografinjo<\/span> Ines Krivec z Ines Images Studio<\/b> iz Roga\u0161ke Slatine pripravili projekt z naslovom Pod ko\u017eo<\/b> (ang. Beneath the Skin). Pred fotografski objektiv smo uspeli privabiti ve\u010d bolnikov z atopijskim dermatitisom, od najmlaj\u0161ih do odraslih, ki imajo zaradi bolezni mo\u010dno po\u0161kodovano ko\u017eo. Bolniki z atopijskim dermatitisom so zaradi tega v dru\u017ebi pogosto tar\u010da \u017ealjivk in posmeha, \u010de\u0161 da so grdi, ku\u017eni, ogabni.  Z namenom, da bi ljudje uvideli, da bolezen nikoli ni \u00bbgrda ali ogabna\u00ab ampak da samo \u00bbje\u00ab in da ima tudi svojo lepo stran, ki \u010dloveka spremeni v bolj so\u010dutno bitje, smo se tudi odlo\u010dili za omenjeni projekt, s katerim smo \u017eeleli javnost ozavestiti o bolezni ter na ta na\u010din postopoma omiliti stigmo, ki jo bolniki z atopijskim dermatitisom do\u017eivljajo.<\/span><\/p>\n

Na <\/span>kratko vam bomo predstavili vsakega sodelujo\u010dega oz. te ki bodo to \u017eeleli. Danes predstavljam Veroniko<\/b>. <\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Vernika zakaj si se odlo\u010dila pristopiti k projektu Beneath the skin?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Odlo\u010ditev za pristop k projektu je bila predvsem hipna. Nisem \u010dlovek, ki bi bil veliko na slikah ali znal pozirati. Zadala sem si izziv in ni mi bilo \u017eal (ko je bilo mimo \u2013 smeh<\/i>).<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Kaj je tisto kar je nujno potrebno spremeniti na bolj\u0161e za bolnike z atopijskim dermatitisom in njihove svojce?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Glede na to, da je bolezen pri vsakem bolniku tako zapleteno druga\u010dna, je te\u017eko re\u010di na splo\u0161no. Gotovo ne bi bila odve\u010d ve\u010dja transparentnost glede zdravil\u2014da se govori o \u0161kodljivih u\u010dinkih; da se paciente jemlje resno, tudi \u010de se z uporabo kak\u0161ne predpisane kreme ne strinjajo. Na\u010dinov zdravljenja je veliko in dobro je vedeti, v kaj se spu\u0161\u010da\u0161, ker je kasneje marsikomu \u017eal. <\/span><\/p>

Odnos z zdravniki bi moral temeljiti na spo\u0161tovanju. Trenutno velikokrat ni tako. Koristno je tudi osve\u0161\u010danje, ker ljudje nimajo pojma, kaj prestajamo, dokler ne \u017eivijo z nami. Mislim, da bolniki z atopijskim dermatitisom pogosto nismo dovolj odlo\u010dni in se ne branimo ravno najbolje\u2014za to, da se postavi\u0161 zase in se ne prilagaja\u0161 za ceno svojega zdravja, potrebuje\u0161 precej samozavesti. Neko splo\u0161no javno znanje bi bilo zelo dobrodo\u0161lo. Pa recimo mo\u017enost, da gre\u0161 na bolni\u0161ko, ko je hudo (kar je v\u010dasih odvisno od dobre volje zdravnika). <\/span><\/p>

\u00a0<\/p>

Kar bo zadevo gotovo spremenilo na bolje so nova uspe\u0161na zdravila in nova odkritja o na\u0161i bolezni. Verjamem, da to prihaja.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Kaj bi danes rekla mali Veroniki?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Kot otrok nisem imela te\u017eav s ko\u017eo razen ob\u010dasnih oku\u017eb. Bi pa verjetno marsikaj od tega, kar vem zdaj, \u017eelela vedeti, ko se je bolezen za\u010dela. Mali Veroniki bi rekla, naj bolezen vzame resno in ne \u010daka, da bo mimogrede izginila. In naj bo njeno zdravje na prvem mestu, pred \u0161olo, slu\u017ebo in odnosi z drugimi. Da bolezen ne bo kar izginila ampak se bom morala za\u010deti v dolo\u010dene smeri bolj truditi. In naj govorim o njej.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Veronika kako si zbrala pogum za fotografiranje?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u00a0 \u00a0 \u00a0V resnici ne vem. To je nekaj novega in hkrati zame netipi\u010dno. Ker sem se prijavila in kljub strahu in dvomom potem hotela to uresni\u010diti.\u00a0<\/span><\/p>

\u00a0<\/p>

\u00a0 \u00a0 \u00a0 Vernika hvala. Hvala iz srca.\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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V Zavodu Atopika smo skupaj s fotografinjo Ines Krivec z Ines Images Studio iz Roga\u0161ke Slatine pripravili projekt z naslovom Pod ko\u017eo (ang. Beneath the Skin). Pred fotografski objektiv smo uspeli privabiti ve\u010d bolnikov z atopijskim dermatitisom, od najmlaj\u0161ih do odraslih, ki imajo zaradi bolezni mo\u010dno po\u0161kodovano ko\u017eo. Bolniki z atopijskim dermatitisom so zaradi tega […]<\/p>\n","protected":false},"author":4,"featured_media":3953,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[25],"tags":[],"class_list":["post-3882","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-splosno"],"yoast_head":"\nProjekt Beneath the skin - Veronika - Atopika<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.atopika.org\/hr\/2021\/01\/09\/projekt-beneath-the-skin-veronika\/\" \/>\n<meta property=\"og:locale\" content=\"hr_HR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Projekt Beneath the skin - Veronika - Atopika\" \/>\n<meta property=\"og:description\" content=\"V Zavodu Atopika smo skupaj s fotografinjo Ines Krivec z Ines Images Studio iz Roga\u0161ke Slatine pripravili projekt z naslovom Pod ko\u017eo (ang. 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