{"id":3035,"date":"2020-07-07T06:54:30","date_gmt":"2020-07-07T04:54:30","guid":{"rendered":"http:\/\/www.atopika.org\/2020\/07\/07\/open-ideo-agents-of-change-atopic-dermatitis-challenge\/"},"modified":"2020-07-07T06:54:30","modified_gmt":"2020-07-07T04:54:30","slug":"open-ideo-agents-of-change-atopic-dermatitis-challenge","status":"publish","type":"post","link":"https:\/\/www.atopika.org\/hr\/2020\/07\/07\/open-ideo-agents-of-change-atopic-dermatitis-challenge\/","title":{"rendered":"Open IDEO – ‘Agents of Change’ Atopic Dermatitis Challenge"},"content":{"rendered":"

Atopijski dermatitis (AD) vrlo je neugodna bolest koja mo\u017ee uvelike utjecati na \u017eivot pacijenta i njegovu obitelj. Svrha projekta \u201eAgents of Change\u201c AD Challenge<\/strong> je okupiti zajednicu ljudi s AD-om, inovatore iz podru\u010dja zdravstvene za\u0161tite i ljude koji rade u partnerstvu sa zagovara\u010dkim grupama ili drugim neprofitnim organizacijama \u0161irom svijeta i prezentiraju ideje koje \u0107e imati zna\u010dajan utjecaj na svakodnevni \u017eivot ljudi s AD-om.<\/p>\n

‘Agents of Change’ Atopic Dermatitis Challenge<\/h2>\n

U 2019. godini, izazov \u201eAgents of Change\u201c<\/strong> AD usredoto\u010dio se na suo\u010davanje s neprihvatljivim i ponekad previ\u0111enim strahovima ili predrasudama s kojima se susre\u0107u odrasli i adolescenti koji boluju od AD-a.<\/p>\n

Nadamo se da \u0107e ova suradnja podr\u017eati inicijative koje \u0107e omogu\u0107iti da zajednica AD-a otvoreno progovori o svojoj bolesti i da stekne dovoljno samopouzdanja za vladanje nad tjelesnim, emocionalnim i dru\u0161tvenim bremenom koje je povezano s AD-om.<\/p>\n

Vidljivi simptomi bolesti, poput suhe ko\u017ee, o\u0161te\u0107enja i pucanja ko\u017ee, crvenila ili tamnjenja ko\u017ee i krasta<\/strong>, mo\u017ee zna\u010dajno utjecati na emocionalno i psihosocijalno stanje ljudi koji \u017eive s AD-om. Stigma koja je povezana s tim simptomima mo\u017ee dovesti do nasilni\u0161tva nad oboljelima od AD-a<\/strong>, koje je \u010desto ukorijenjeno u neshva\u0107anju same bolesti.<\/p>\n

Farmaceutska tvrtka Sanofi Genzyme i Regeneron je kroz \u201eAgents of Change\u201c AD Challenge upozorila na emocionalno i dru\u0161tveno breme<\/strong> koje nastaje zbog maltretiranja i poku\u0161ala na\u0107i rje\u0161enja koja ja\u010daju mo\u0107 zajedni\u0161tva oboljelih od AD-a.<\/p>\n

Me\u0111u mnogim inicijatorima ideja za rje\u0161avanje ovog problema koji dolaze iz svih dijelova svijeta, odabrano je pet primatelja bespovratnih sredstava.<\/strong><\/p>\n

Zavod Atopika sa sjedi\u0161tem u Mariboru jedan je od pet primatelja subvencije s ciljem osnivanja me\u0111unarodnog i dr\u017eavnog knji\u017eevno-umjetni\u010dkog natjecanja za pacijente oboljele od atopijskog dermatitisa (International and national literary\/art contest for patients suffering from atopic dermatitis).<\/p>\n

Me\u0111unarodni i dr\u017eavni knji\u017eevno-umjetni\u010dkog natjecanja za pacijente oboljele od atopijskog dermatitisa (International and National Literary\/ Visual Arts Contest for Patients Suffering with Atopic Dermatitis)<\/strong><\/a><\/h4>\n

Atopika<\/strong> je nevladina i neprofitna organizacija koja nastoji pobolj\u0161ati kvalitetu \u017eivota pacijenata s atopijskim dermatitisom (AD) i njihovih bli\u017enjih.<\/p>\n

Cilj Zavoda je iskoristiti snagu kreativnosti i putem nacionalnih i me\u0111unarodnih umjetni\u010dkih natjecanja skrenuti pozornost na psihi\u010dko i fizi\u010dko nasilje s kojim se suo\u010davaju mnogi pacijenti s AD-om. Zavod Atopika \u0107e pozvati djecu, adolescente i odrasle pacijente s AD-om, kao i one koji su vr\u0161ili nasilje nad nekim tko ima AD, s ciljem da dijele umjetni\u010dka djela koja \u0107e o\u017eivjeti natje\u010daj \u201cMoja ko\u017ea-moja bol\u201d<\/strong>. Cilj natje\u010daja je obrazovanje, potpora i empatija<\/strong> prema ljudima koji \u017eive s AD-om. Najbolji izabrani radovi u svakoj kategoriji biti \u0107e istaknuti u kratkom videozapisu koji \u0107e biti predstavljen preko dru\u0161tvenih medija i u mre\u017enoj knji\u017enici.<\/p>\n

Preko osobnog pristupa bacanju svjetla na emocionalno breme koje trpe pacijenti s AD-om, Zavod \u017eeli pobuditi suosje\u0107ajniji svijet za ljude koji boluju od ove bolesti.<\/p>\n

Ostalih 4 dobitnika subvencija, koji tako\u0111er imaju odli\u010dne zamisli za suo\u010davanje sa tim izazovom, dolaze iz cijeloga svijeta.<\/strong> U nastavku su predstavljene njihove ideje kako pomo\u0107i bolesnicima koji svaki dan \u017eive s AD-om.<\/p>\n

Youth-Led Education and Awareness Campaign (kampanja za obrazovanje i osvje\u0161tavanje pod vodstvom mladih)<\/strong><\/a><\/h4>\n

djeluje u okviru organizacije Global Parents for Eczema Research (GPER)<\/strong>, odnosno ameri\u010dke mre\u017ee roditelja koji uz pomo\u0107 istra\u017eivanja i inovacija poku\u0161avaju pobolj\u0161ati kvalitetu \u017eivota djece s AD. Za suo\u010davanje s nasiljem koje do\u017eivljavaju osobe koje boluju od AD je GPER predlo\u017eila po\u010detak kampanje za osvije\u0161tenost o AD na najpopularnijim komunikacijskim platformama koje koriste adolescenti<\/strong>, kao \u0161to su Snapchat, TikTok i drugi dru\u0161tveni mediji. GPER se nada da \u0107e kampanja potaknuti druge adolescente koji \u017eive s AD da podijele svoju pri\u010du, a istovremeno oja\u010dati povjerenje i sposobnosti vodstva izme\u0111u sudjeluju\u0107im adolescentima.<\/p>\n

Anti-Bullying Ambassadors as Agents of Change (ambasadori protiv nasilja kao nositelji promjena)<\/strong><\/a><\/h4>\n

Nagrada \u201cDiana Award\u201d<\/strong> sa sjedi\u0161tem u Londonu, Ujedinjenom Kraljevstvu, je vode\u0107a neprofitna organizacija \u010dije se djelovanje temelji na uvjerenju princeze Diane da mladi mogu promijeniti svijet. Sa certificiranim programom za sprije\u010davanje nasilja, organizacija u\u010di mlade, \u0161kolske djelatnike i roditelje kako vladati svim oblicima \u0161tetnog pona\u0161anja u \u0161kolama, zajednicama i na internetu.<\/p>\n

Njihovi prijedlozi za sprije\u010davanje nasilja koje do\u017eivljavaju osobe sa AD uklju\u010duju prepoznavanje i osposobljavanje mladih osoba s AD da postanu \u201cambasadori protiv nasilja\u201d<\/strong>. Osposobljavanje protiv nasilja izvode u desetak izabranih \u0161kola, tako da ohrabruju bolje razumijevanje bolesnika i njihovu prihva\u0107enost u \u0161kolama, zajednicama in a internetu. Nagrada \u201cDiana Award\u201d s kori\u0161tenjem tog vr\u0161nja\u010dkog modela cilja na dizanje razine razumijevanja razli\u010ditosti i svakodnevnih izazova koje donosi \u017eivot s AD-om.<\/p>\n

Early Screening of Children with Atopic Dermatitis and Interventions (rano otkrivanje djece s atopijskim dermatitisom te intervencije lije\u010denja)<\/strong><\/a><\/h4>\n

JAMII LIGHT UP<\/strong> je neprofitna organizacija sa sjedi\u0161tem u Monduliju, Tanzaniji, \u010diji je zadatak osiguravanje obrazovne, financijske i emocionalne potpore ljudima s AD-om, njihovim obiteljima i najbli\u017eima.<\/p>\n

Ova organizacija te\u017ei ka uvedbi probirnih pregleda za djecu s AD-om u postoje\u0107im imunolo\u0161kim ambulantama lokalnih zajednica<\/strong>, s \u010dime bi se osiguralo odgovaraju\u0107e osposobljavanje i potpora obiteljima koje su zahva\u0107ene posljedicama AD-a. Organizacija JAMII LIGHT UP sudjelovat \u0107e sa roditeljima posebice u razvijanju pristupa, odnosno oru\u0111a koja \u0107e se upotrebljavati u posebno organiziranim skupinama za potporu obiteljima koje se suo\u010davaju s AD-om, a koje imaju cilj bolje razumijevanje AD-a i sprije\u010davanje dru\u0161tvene stigme. Potporne skupine \u0107e obiteljima omogu\u0107iti i forum na kojemu \u0107e roditelji mo\u0107i raspravljati o svojim iskustvima kao i dijeliti svoje price o \u017eivotu i skrbi za djecu s AD.<\/p>\n

JAMII LIGHT UP se nada da \u0107e takva inicijativa izgraditi potpornu mre\u017eu za lokalno zajedni\u0161tvo AD i nadahnuti druge regije za izvo\u0111enje sli\u010dnih djelatnosti.<\/p>\n

\u00bbLife Stories\u00ab \u2013 Adolescence and Atopic Dermatitis\u00ab (\u017eivotne pri\u010de – adolescencija i atopijski dermatitis)<\/strong><\/a><\/h4>\n

Eczema SUPPORT Australia (ESA)<\/strong>, dobrovoljna organizacija za bolesnike s ekcemom koja ima sjedi\u0161te u Gold Coastu u Australiji, omogu\u0107uje potporu i povezivanje ljudi u Australiji \u010dija je kvaliteta \u017eivota zna\u010dajno sni\u017eena radi posljedica AD-a i alergija.<\/p>\n

ESA si daje zadatak poticanja razumijevanja osoba koje \u017eive s AD-om pomo\u0107u stvaranja videoserije \u201cPri\u010de \u017eivota\u201d<\/strong>, koje \u0107e prikazivati iskustva adolescenata s AD-om. Cilj ESA je dijeliti te pri\u010de s lokalnim i me\u0111unarodnim medijima<\/strong> da bi upozorila na problematiku uznemirivanja s kojima se suo\u010davaju oboljeli od AD-a, a pored me\u0111unarodnih medija za ovaj cilj koristili bi se i dru\u0161tevni mediji.<\/p>\n

Preko predstavljanja pri\u010da pacijenata o utjecaju AD-a u stvarnom \u017eivotu ESA \u017eeli pove\u0107ati osvije\u0161tenost javnosti i dodatno poduprijeti \u010dlanove zajednica AD-a, \u0161to bi trebalo dovesti do ja\u010danja njihove uloge, smanjivanja nasilja i u kona\u010dnici pobolj\u0161avanja kvalitete \u017eivota.<\/p>\n

Upravni odbor \u201cAgents of Change\u201d AD Challenge je izme\u0111u niza odli\u010dnih zamisli koje je primio iz cijeloga svijeta, izabrala primatelje subvencija.<\/strong> \u010clanice upravnog odbora su:<\/p>\n

\u010clanice upravnog odbora su:<\/h4>\n

 <\/p>\n

\"\"Navdeep Gosal,<\/strong>
\n<\/strong><\/p>\n

Navdeep Gosal, rukovoditeljica proizvoda na podru\u010dju zdravstvene tehnologije sa sjedi\u0161tem u podru\u010dju San Francisca. Kada je njezinom sinu dijagnosticiran te\u0161ki ekcem, Navdeep je razvila \u201cEczema<\/strong> Tracker<\/strong>\u201d, besplatno rje\u0161enje koje se temelji na aplikaciji preko koje pacijenti mogu nadzirati i kontrolirati simptome ekcema. Navdeep vodi i blog o \u017eivotnom stilu pod nazivom \u201cEczema<\/strong> Living<\/strong>\u201d, u kojem raspravlja o svojoj ulozi majke djeteta s ekcemom kako bi pomogla drugim roditeljima, pomo\u0107u razmjene iskustava.<\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

\"\"<\/u><\/strong><\/p>\n

Africa Luca de Tena Smith<\/strong><\/p>\n

je direktorica za komunikacije u Association of People Affected by Atopic Dermatitis (AADA)<\/strong> u \u0160panjolskoj. Udruga ljudi koji pate od atopijskog dermatitisa (AADA) je neprofitna organizacija bolesnika, \u010dija je namjera pobolj\u0161avanje kvalitete \u017eivota ljudi s AD. Africa, koja \u017eivi u Madridu, ve\u0107inu svojeg \u017eivota boluje od ozbiljnog oblika AD, \u0161to joj je omogu\u0107ilo jo\u0161 dublje razumijevanje izazova sa kojima se svaki dan suo\u010davaju oboljeli od AD-a. Tako\u0111er je glumica, komi\u010darka i ustanoviteljica Afri\u2019s Cookies (Afrini keksi).<\/p>\n","protected":false},"excerpt":{"rendered":"

Atopijski dermatitis (AD) vrlo je neugodna bolest koja mo\u017ee uvelike utjecati na \u017eivot pacijenta i njegovu obitelj. Svrha projekta \u201eAgents of Change\u201c AD Challenge je okupiti zajednicu ljudi s AD-om, inovatore iz podru\u010dja zdravstvene za\u0161tite i ljude koji rade u partnerstvu sa zagovara\u010dkim grupama ili drugim neprofitnim organizacijama \u0161irom svijeta i prezentiraju ideje koje \u0107e […]<\/p>\n","protected":false},"author":4,"featured_media":2962,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[69],"tags":[],"class_list":["post-3035","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aktualan"],"yoast_head":"\nOpen IDEO - 'Agents of Change' Atopic Dermatitis Challenge - Atopika<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.atopika.org\/hr\/2020\/07\/07\/open-ideo-agents-of-change-atopic-dermatitis-challenge\/\" \/>\n<meta property=\"og:locale\" content=\"hr_HR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Open IDEO - 'Agents of Change' Atopic Dermatitis Challenge - Atopika\" \/>\n<meta property=\"og:description\" content=\"Atopijski dermatitis (AD) vrlo je neugodna bolest koja mo\u017ee uvelike utjecati na \u017eivot pacijenta i njegovu obitelj. 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