Zavod \u201eAtopika\u201c otvara nova vrata i time novu pri\u010du. Valentina i ja upoznale smo se tek nedavno kada sam sudjelovala u njenom projektu podizanja svijesti o atopijskom dermatitisu. Ona je osoba s kojom sam se jako brzo povezala i sa kojom suosje\u0107am. Ne udru\u017euje nas samo atopijski dermatitis, razumijevanje svrbe\u017ea i patnje, ve\u0107 imamo i isti pogled na svijet, ljubav prema ljudima, \u017eivotinjama, prirodi, putovanjima\u2026 Valentina studira socijalni rad i obrazuje se u potpornim skupinama, pa \u0107e stoga preuzeti potpornu skupinu Zavoda \u201eAtopika\u201c u Ljubljana. Kroz svoje vlastito iskustvo i u skladu s misijom Zavoda \u201eAtopika\u201c vodit \u0107e grupu za podr\u0161ku pru\u017eaju\u0107i toplinu i razumijevanje. Valentina draga, hvala ti na anga\u017emanu i dobrodo\u0161lici. Sami smo sna\u017eni, ali zajedno nepobjedivi!<\/p>\n\n
Tina<\/p>\n\n
Tekst autora objavljen je u nepromijenjenom sadr\u017eaju, ali je lektoriran. Pri\u010da je osobna i ne odra\u017eava nu\u017eno stajali\u0161te ustanove.<\/em> <\/span><\/p><\/p>\n\n\n\n
Pri\u010da nove suradnice i prista\u0161e Zavoda Atopika, Valentine<\/h2>\n\n
<\/figure><\/div>\n\n
Atopijski dermatitis pojavio se prvi put u djetinjstvu kada sam imala 3 godine. U me\u0111uvremenu je moja bolest nestala i ponovno se pojavila u kasnom pubertetu (u 17. godini). Danas se sa tom bole\u0161\u0107u suo\u010davam ve\u0107 petu godinu. Razni krvni testovi, samopla\u0107eni pregledi, nebrojeni posjeti razli\u010ditim dermatolozima, sve me to ko\u0161talo tisu\u0107e eura za ciljem pronalaska \u010dudesne kreme koja \u0107e pobolj\u0161ati stanje moje ko\u017ee i posljedi\u010dno me izlije\u010diti, puno neprospavanih no\u0107i, lo\u0161eg raspolo\u017eenja, krivljenja sebe, gledanja drugih djevojke iste dobi s prekrasnom ko\u017eom i osje\u0107ajem inferiornosti. To su stvari oko kojih se moj \u017eivot vrti zadnjih pet godina otkad imam te\u017eak oblik atopijskog dermatitisa<\/p>\n\n
Skrivanje ruku, prekrivanje lica puderom i svakodnevno obja\u0161njavanje \u0161to imam na svojoj ko\u017ei bili su sastavni dijelovi moje svakodnevne rutine. Sve se vrtilo oko bolesti. Prvo pitanje koje su mi roditelji postavili kad bi me zvali na telefon ili kad sam se vratila ku\u0107i bilo je kakvo je stanje sa mojom ko\u017eom. U dobroj namjeri da se \u0161to prije pozdravimo sa mojom bole\u0161\u0107u i ponovno \u017eivimo miran \u017eivot. Na\u017ealost, nekako smo se navikli na \u010dinjenicu da je kroni\u010dna bolest promijenila svakodnevicu cijele na\u0161e obitelji i za\u0161la dublje u na\u0161e funkcioniranje.<\/strong> Svaki dan sam iz srednje \u0161kole dolazila umorna, izgrebana i lo\u0161eg raspolo\u017eenja. Dobivala sam prigovore i izjave poput “Opet je lo\u0161e volje”, “Ne znam \u0161to nije u redu …” Ja sam samo \u017eeljela dvije stvari: da me prestane svrbiti i da me puste da se \u010de\u0161em jer vi\u0161e nisam mogla izdr\u017eati.<\/span><\/p><\/p>\n\n
Svaki put kada bi se \u010de\u0161ala su me roditelji dobronamjerno i nje\u017eno udarili po ruci i rekli da se prestanem \u010de\u0161ati, ali ja to nisam mogla. Htjela sam sam si otrgati ko\u017eu: zami\u0161ljala sam kako bih ju rado skinula sa sebe, samo da bi me prestalo svrbjeti.<\/strong> Nisam bila u\u010destala u mazanju ko\u017ee sa kortikosteroidima, jer se nakon njih nisam dobro osje\u0107ala-jo\u0161 me vi\u0161e svrbjelo i ko\u017ea je postajala jo\u0161 vi\u0161e crvena, stoga sam ih prestala koristiti. Svaki put kada bih i\u0161la lije\u010dniku zbog bilo kojeg drugog problema je lije\u010dnik opazio moje ruke i napisao mi jo\u0161 jednu uputnicu. Od osobnog lije\u010dnika do dermatologa, homeopata, biorezonancije, privatnog dermatologa i ponovno do javnog dermatologa … Sve se vrtjelo oko moje ko\u017ee.<\/span><\/p><\/p>\n\n
Majka je bila spremna u\u010diniti sve da mi ozdravi rane na ko\u017ei, da bi zacijelila rane svojoj k\u0107eri, ali uvijek je stajala na \u010dvrstoj zemlji, nemo\u010dna. I u meni je<\/strong> bio prisutan osje\u0107aj krivice jer sam mislila da se ne ma\u017eem dovoljno, ne<\/strong> pazim dovoljno, da<\/strong> sam sama sebi kriva jer se budim u krvavoj posteljini<\/strong>. Na po\u010detku sam imala atopijski dermatitis samo na rukama, potom se ra\u0161irio na cijelo tijelo i \u0161to je najgore, na lice, a do tada sam uvijek imala lijepu ko\u017eu. Kada su doma opazili da mi se bolest ra\u0161irila na lice, njihovo stajali\u0161te da je potrebno ne\u0161to u\u010diniti se dodatno u\u010dvrstilo. Osje\u0107ala sam se kao da mi se sru\u0161io cijeli svijet, bila sam u potpunosti nemo\u0107na.<\/span><\/p><\/p>\n\n
<\/figure><\/div>\n\n
Koga sam prvi put upoznala, pogledao je moju ko\u017eu i odstupio. Pitao je: “Ajoj, \u0161to to ima\u0161?”, Rekla sam da imam atopijski dermatitis. Sljede\u0107e je pitanje bilo \u0161to je to i je li zarazno. Ja sam, iznova i iz dana u dan, obja\u0161njavala: NE, NIJE INFEKTIVNO; DA, VE\u0106 SAM BILA KOD DOKTORA. DA, MA\u017dEM SA KREMOM; NE, NITI TA KREMA MI NIJE POMOGLA.<\/span><\/strong><\/p><\/p>\n\n
Stranci su uvijek puni savjeta kako izlije\u010diti ko\u017eu da opet bude \u201elijepa\u201c. Vjerujte mi: svaki put kad sam opet obja\u0161njavala i opravdavala svoju ko\u017eu pojavila se nova bol u meni i opet me po\u010delo nepodno\u0161ljivo svrbjeti.<\/strong> Mo\u017eda sam tijekom ove pri\u010de zanemarila svrbe\u017e. Stvarno je nepodno\u0161ljiv. Nije usporedivo sa ubodom komarca. Nije usporedivo ni sa \u010dim. Toliko me svrbi, da se ranim do krvi i boli.<\/span><\/p><\/p>\n\n
Sje\u0107am se pro\u0161le zime kada sam po\u010dela raditi u trgovini. Radila sam na vo\u0107u, a ko\u017ea na rukama postala mi je ljuskava i krvava. Stres, neprospavane no\u0107i i ustajanje u pet ujutro pogor\u0161ali su mi stanje do te mjere da su me jednog dana poslali izravno u hitnu jer sam imala krvave gnojne rane po rukama i tijelu. Morala sam napustiti posao jer mi se stanje jako pogor\u0161alo. Po\u010dela sam razmi\u0161ljati – \u0161to ako nikad ne bidem mogla raditi bilo koji posao, \u0161to ako me na razgovoru budu pogledali u ruke i lice i vidjeli mi rane.<\/strong> Na\u017ealost, danas vanjski izgled postaje sve va\u017eniji. Radit \u0107u sa ljudima, \u0161to ako me zbog toga budu gledali druga\u010dije? \u0160to ako se uop\u0107e ne\u0107e mo\u0107i usredoto\u010diti na razgovor sa mnom, jer \u0107e im uvijek stalno padati na pamet ho\u0107e li me pitati \u0161to imam na svojoj ko\u017ei.<\/span><\/p><\/p>\n\n
<\/figure><\/div>\n\n
Sa krastama, crvenilom i izgrebanim rukama ukrcala sam se u avion u srpnju 2018. godine i otputovala u Afriku (u Gambiju) kao volonter, kako bih svoju djecu u\u010dila engleskom jeziku. Djeca su mi polagala ruke na rane,<\/strong> gledala ih i milovala ih; nijedno od njih i op\u0107enitko nitko me nije ni pitao \u0161to imam na svojoj ko\u017ei. Samo su gledali i bili zahvalni.<\/strong> Taj mjesec, kada sam bila odsje\u010dena od svega, kad sam doslovno bila odsje\u010dena od svijeta, produbila sam poznavanje same sebe i ustanovila da zapostavljam svoje emocije, da ne slu\u0161am, da sam stalno u sukobu sa svojim tijelom. Po\u010detkom kolovoza u\u0161la sam u avion sa potpuno “lijepim” rukama. Bez ogrebotina. Me\u0111utim, razlog nije bio moj odlazak u Afriku. Razlog je bio taj \u0161to sam nau\u010dila slu\u0161ati samu sebe, \u0161to sam po\u010deo gledati na sebe kao na tijelo sa kojim moram sura\u0111ivati; da cijenim svaki dan kada se probudim bez grebanja, svaki dan kada mi se ko\u017ea popravila. Po\u010dela sam davati pa\u017enju odnosu izme\u0111u tijela i du\u0161e.<\/strong> Po\u010dela sam slu\u0161ati svoje tijelo i, prije svega, izbacila sam iz sebe osje\u0107aje tjeskobe, bespomo\u0107nosti, bijesa i \u00a0nezadovoljstva, koji su me pro\u017eimali iznutra. Trenutno je stanje ko\u017ee jo\u0161 uvijek u redu. \u010cim izgubim kontakt sa sobom i pod stresom sam, tijelo me upozori i tada se smirim i slu\u0161am ga. Znam da ne\u0107u izlije\u010diti atopijski dermatitis.<\/p>\n\n
Znam da moja ko\u017ea nikada ne\u0107e biti savr\u0161ena, ali prihva\u0107am je onakvom kakva jest. Ona je moja i ona je dio mene.<\/strong> Kao studentica socijalnog rada svjesna sam va\u017enosti psihosocijalne podr\u0161ke. Koliko je lak\u0161e kada nekome ka\u017eete kako se osje\u0107ate, kroz \u0161to ste pro\u0161li i da vam smeta izgled va\u0161e ko\u017ee. Na\u017ealost, nema upute ili recepta o tome \u0161to nekome poma\u017ee, kako bilo tko mo\u017ee ubla\u017eiti svrbe\u017e i smanjiti \u010de\u0161anje, kako pobolj\u0161ati svoju ko\u017eu. Ali va\u017ena je podr\u0161ka, podr\u0161ka u ovim te\u0161kim vremenima. Svaki pojedinac za sebe zna ili nau\u010di \u0161to je za njega najbolje. Stvari koje \u010dine atmosferu grupe za potporu prije svega su podr\u0161ka, dru\u017eenje, razmjena iskustava i povjerenje.<\/span><\/p>
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Zavod \u201eAtopika\u201c otvara nova vrata i time novu pri\u010du. Valentina i ja upoznale smo se tek nedavno kada sam sudjelovala u njenom projektu podizanja svijesti o atopijskom dermatitisu. Ona je osoba s kojom sam se jako brzo povezala i sa kojom suosje\u0107am. Ne udru\u017euje nas samo atopijski dermatitis, razumijevanje svrbe\u017ea i patnje, ve\u0107 imamo i […]<\/p>\n","protected":false},"author":4,"featured_media":2354,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[65],"tags":[],"class_list":["post-2353","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-opce"],"yoast_head":"\n
Valentinina pri\u010da - Atopika<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.atopika.org\/hr\/2018\/12\/15\/valentinina-prica\/\" \/>\n<meta property=\"og:locale\" content=\"hr_HR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Valentinina pri\u010da - Atopika\" \/>\n<meta property=\"og:description\" content=\"Zavod \u201eAtopika\u201c otvara nova vrata i time novu pri\u010du. Valentina i ja upoznale smo se tek nedavno kada sam sudjelovala u njenom projektu podizanja svijesti o atopijskom dermatitisu. Ona je osoba s kojom sam se jako brzo povezala i sa kojom suosje\u0107am. 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Valentina i ja upoznale smo se tek nedavno kada sam sudjelovala u njenom projektu podizanja svijesti o atopijskom dermatitisu. Ona je osoba s kojom sam se jako brzo povezala i sa kojom suosje\u0107am. 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