{"id":8544,"date":"2026-09-01T14:13:26","date_gmt":"2026-09-01T12:13:26","guid":{"rendered":"https:\/\/www.atopika.org\/?p=8544"},"modified":"2026-09-01T14:13:26","modified_gmt":"2026-09-01T12:13:26","slug":"glas-pacientov-pri-atopijskem-dermatitisu","status":"publish","type":"post","link":"https:\/\/www.atopika.org\/en\/2026\/09\/01\/glas-pacientov-pri-atopijskem-dermatitisu\/","title":{"rendered":"Ko glas pacientov postane del mednarodne stroke – Zavod Atopika soavtor strokovnih \u010dlankov"},"content":{"rendered":"\t\t
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Atopijski dermatitis<\/strong> je veliko ve\u010d kot bolezen ko\u017ee. To dobro vedo ljudje, ki z njim \u017eivijo vsak dan, njihove dru\u017eine in tudi organizacije pacientov. Prav zato je pomembno, da je glas pacientov<\/strong> sli\u0161an tudi v raziskavah in mednarodnem strokovnem prostoru.<\/p>

Prav zato je za Zavod Atopika pomembno, da glas pacientov<\/b> ni prisoten samo pri ozave\u0161\u010danju in podpori, ampak tudi tam, kjer nastajajo nova strokovna spoznanja, priporo\u010dila in usmeritve za prihodnost zdravljenja. V zadnjih mesecih smo v Zavodu Atopika sodelovali pri dveh mednarodnih strokovnih \u010dlankih o atopijskem dermatitisu.<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Zakaj je glas pacientov pomemben pri obravnavi atopijskega dermatitisa?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Prvi \u010dlanek, Patient-Centred Care in Atopic Dermatitis: Digital Communication, Misinformation, and Global Perspectives From the PaCeCAD Sessions<\/strong>, je bil objavljen v reviji JEADV Clinical Practice<\/strong>. Nastal je na podlagi PaCeCAD sre\u010danja, ki je potekalo oktobra 2025 v Melbournu v okviru 15. mednarodnega simpozija Georga Rajke o atopijskem dermatitisu. Razprave so se dotaknile vpra\u0161anj, s katerimi se danes sre\u010duje skoraj vsak pacient.<\/p>

Kam po informacije o bolezni? Komu zaupati? Kako prepoznati napa\u010dne informacije na dru\u017ebenih omre\u017ejih? Kak\u0161no vlogo imajo umetna inteligenca in nova digitalna orodja? In predvsem: kako ohraniti dober odnos ter zaupanje med pacientom in zdravstvenim strokovnjakom?<\/strong><\/p>

\u010clanek opozarja na zanimiv problem. Pacienti pogosto i\u0161\u010dejo odgovore na spletu tudi zato, ker do dermatologa ne morejo priti dovolj hitro ali ker med pregledi potrebujejo dodatne informacije in podporo. Zato lahko prostor, ki ga ne zapolni zdravstveni sistem, hitro zapolnijo dru\u017ebena omre\u017eja in nepreverjeni nasveti. Re\u0161itev zato ni samo opozarjanje pacientov, naj ne verjamejo vsemu, kar preberejo na spletu. Pomembni so dobra komunikacija, razumljive informacije, dostop do strokovne pomo\u010di in odnos, v katerem se pacient po\u010duti sli\u0161anega. \u010clanek najdete tukaj.\u00a0<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Ko uspe\u0161no zdravljenje pomeni ve\u010d kot le izbolj\u0161anje ko\u017ee<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Drugi \u010dlanek, pri katerem smo sodelovali, se osredoto\u010da na pristop Treat-to-Target pri atopijskem dermatitisu<\/strong>. Gre za pristop, pri katerem se skupaj z bolnikom dolo\u010dijo jasni cilji zdravljenja in nato redno spremlja, ali jih zdravljenje dejansko dosega.<\/p>

Pri atopijskem dermatitisu namre\u010d ni dovolj spremljati samo videza ko\u017ee. Bolezen mo\u010dno vpliva tudi na srbenje, spanje, vsakodnevno delovanje, du\u0161evno po\u010dutje, odnose, \u0161olo ali delo ter splo\u0161no kakovost \u017eivljenja<\/strong>.<\/p>

Prav zato \u010dlanek poudarja potrebo po bolj celostnem in bolniku prilagojenem spremljanju zdravljenja. Pomembno vpra\u0161anje ni samo, ali se je ko\u017ea izbolj\u0161ala, ampak tudi: Ali bolnik bolje spi? Ali ga srbenje manj ovira? Ali lahko normalneje opravlja vsakodnevne aktivnosti? Ali je zdravljenje zanj sprejemljivo in obvladljivo?<\/strong><\/p>

Za Zavod Atopika je sodelovanje pri tak\u0161nem strokovnem delu pomembno predvsem zato, ker omogo\u010da, da so pri oblikovanju priporo\u010dil upo\u0161tevane tudi izku\u0161nje in potrebe ljudi, ki z atopijskim dermatitisom dejansko \u017eivijo<\/strong>. \u010clanek najdete tukaj.\u00a0<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Za Zavod Atopika<\/a> je pomembno, da pri tak\u0161nih mednarodnih sodelovanjih ne predstavljamo le organizacije, temve\u010d predvsem izku\u0161nje in potrebe ljudi, ki z atopijskim dermatitisom \u017eivijo vsak dan. Verjamemo, da lahko prav povezovanje strokovnega znanja z izku\u0161njami pacientov vodi do bolj\u0161e obravnave, bolj smiselnih ciljev zdravljenja in re\u0161itev, ki imajo resni\u010den vpliv na kakovost \u017eivljenja.<\/p>

Veseli nas, da lahko tudi iz Slovenije prispevamo k tem razpravam in soustvarjamo prihodnost obravnave atopijskega dermatitisa.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Atopijski dermatitis je veliko ve\u010d kot bolezen ko\u017ee. To dobro vedo ljudje, ki z njim \u017eivijo vsak dan, njihove dru\u017eine in tudi organizacije pacientov. Prav zato je pomembno, da je glas pacientov sli\u0161an tudi v raziskavah in mednarodnem strokovnem prostoru. Prav zato je za Zavod Atopika pomembno, da glas pacientov ni prisoten samo pri ozave\u0161\u010danju […]<\/p>\n","protected":false},"author":4,"featured_media":8554,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[24,25],"tags":[],"class_list":["post-8544","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aktualno","category-splosno"],"yoast_head":"\nGlas pacientov pri atopijskem dermatitisu<\/title>\n<meta name=\"description\" content=\"Glas pacientov pri atopijskem dermatitisu je pomemben del sodobne obravnave. 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