{"id":4891,"date":"2021-07-10T11:04:29","date_gmt":"2021-07-10T09:04:29","guid":{"rendered":"http:\/\/www.atopika.org\/?p=4891"},"modified":"2021-07-12T15:43:41","modified_gmt":"2021-07-12T13:43:41","slug":"cesa-pa-je-vas-najbolj-strah","status":"publish","type":"post","link":"https:\/\/www.atopika.org\/en\/2021\/07\/10\/cesa-pa-je-vas-najbolj-strah\/","title":{"rendered":"\u010cESA JE VAS NAJBOLJ STRAH?"},"content":{"rendered":"\t\t
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Eva in Val. Dve \u010dudoviti osebi in izjemna borca.<\/strong> Z nami sta delila svojo zgodbo o atopijskem dermatitisu. Zgodbo, v kateri se boste prepoznali. Vzemite si \u010das, preberite in videli boste, da v tem boju niste sami. Da obstaja lu\u010d na koncu tunela<\/strong>. Evo poznam \u017ee dolgo in vem, da sta se s sinom dolgo \u010dasa borila s te\u017eko obliko atopijskega dermatitisa. Mama levinja, ki je skupaj s svojim partnerjem otroku nudila ve\u010d kot vse z le nekaj urami spanja na teden. Tokrat pa sem spoznala tudi Vala. Mo\u010dnega empati\u010dnega junaka<\/strong>, ki je ob\u010dutil marsikaj \u010desar ne bi privo\u0161\u010dili \u0161e najve\u010djemu sovra\u017eniku. A vendar s svojo zgodbo, \u017ee pri tako rosnih letih, spreminja svet.<\/strong> Tvoj in moj.\u00a0<\/p>

Eva draga iz srca hvala za va\u0161o zgodbo poguma, mo\u010di in uspeha.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u010cesa pa je vas najbolj strah?<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Strah je eno izmed \u010dlovekovih najmo\u010dnej\u0161ih \u010dustev. Omogo\u010da nam, da pre\u017eivimo, in poskrbi, da se izognemo nevarnostim ter hkrati pred njimi ubranimo druge. \u010cesa vas je res strah? Bolezni, izgube bli\u017enjih, trpljenja, trpljenja va\u0161ih otrok? Se bojite, da bi se va\u0161i otroci zna\u0161li v stiski, se po\u0161kodovali ali ob\u010dutili bole\u010dino, pa jim ne bi mogli ali ne bi znali pomagati?<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\tMamo boli, ko sli\u0161i ostale otroke: \u00bbTa je ku\u017een, gremo stran\u2026\u00ab in \u00bbZakaj ima\u0161 pa ti tako grdo ko\u017eo, sigurno se lahko kaj nalezem od tebe\u2026.\u00ab. \t\t\t<\/p>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\tEva<\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Na\u0161a zgodba<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Tisto no\u010d sem se zbudila najmanj 13-krat. Za ve\u010d ne vem, ker sem od iz\u010drpanosti nehala \u0161teti. Moj sin je bil takrat star 4 leta. Razlog za njegovo in moje zbujanje je bil atopijski dermatitis<\/b> in posledi\u010dno praskanje – dan za dnem in no\u010d za no\u010djo, pono\u010di z jokom v agoniji. <\/b>Vsakemu zbujanju je sledilo previjanje ran, priprava obkladkov s fiziolo\u0161ko raztopino, mazanje s hladilnim mazilom in drugimi kremami, menjava povojev in preobla\u010denje pi\u017eame, ki je bila krvava in umazana od zagnojenih ranic in debelih plasti negovalnih krem. Od tretjega meseca pa do petega leta starosti ni v celoti prespal niti ene same no\u010di. <\/em><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Diagnoza - Atopijski dermatitis<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Njegova ko\u017ea je bila od bolezni preprosto grozna. Zdaj, ko se ozrem nazaj, lahko to napi\u0161em. Obraz, vrat, nogice, roke, hrbet, vse v izpu\u0161\u010dajih, pikicah, krastah, ranah\u2026 Dneve, mesece in leta. Ko se mi je zazdelo, da je mogo\u010de malo bolj\u0161e, je vsaka malenkost poru\u0161ila moje upanje \u2013 ko je zacvetelo novo drevo pred stanovanjem, ko se je zamenjal letni \u010das, ko je bil sin prehlajen, ko je pojedel \u0161tru\u010dko, ki jo je prej \u017ee 100-krat, pa je kar na lepem dobil alergijsko reakcijo nanjo. Tako kot veliko atopikov ima sin tudi \u0161tevilne alergije na \u017eivila, pelode in pr\u0161ico. Vsak stik z alergenom je samo poslab\u0161al stanje njegove ko\u017ee.<\/em><\/p>

Zaklju\u010dila sem fakulteto naravoslovne smeri, pa nisem kirurg septik, da bi znala oskrbeti tiste ne\u0161tete rane in ranice po vsem njegovem telesu.<\/strong> Nisem dermatolog, da bi ob vsaki spremembi ko\u017ee znala ravnat pravilno. Kaj naj naredim, \u010de se ranice rosijo; kaj, \u010de se ne zacelijo tako kot obi\u010dajno? Kaj naj z mehur\u010dki na ko\u017ei, ki so enkrat polni gnoja drugi\u010d pa bistre teko\u010dine? Kako naj pomagam sinu, ko se mu ko\u017ea lu\u0161\u010di potem pa je vsa v rde\u010dih made\u017eih, ker se mu koprivnica (napihnjeni izpu\u0161\u010daji zaradi alergijske reakcije) me\u0161a z zagnojenimi, \u017ee zabrazgotinjenimi in krastavimi deli ko\u017ee? Vsemu pa je skupno le eno – da srbi, da zelo srbi.<\/strong> Tako srbi, da se ne da spati ne slediti igri. Sin si je ob hudem srbe\u017eu trgal ko\u0161\u010dke ko\u017ee, zato sem ga pono\u010di na silo zbujala in mu predvajala risanke na telefonu, da sem vsaj malo preusmerila njegovo pozornost.<\/strong> Od praskanja se je povr\u0161ina njegovih nohtkov kar svetila.<\/em><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Preizkusili smo vse.<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Za nego smo preizkusili vse kar je bilo takrat na voljo<\/strong> v lekarni – kreme, losjone in kopeli – in vse kar je obstajalo na spletu, od doma\u010dih pripravkov do najbolj inovativnih proizvodov, tinktur, olj, hidrolatov, kopeli, razku\u017eil, povojev, zlo\u017eencev, posebnih mre\u017eic in povojev iz tujine. V iskanju \u010dude\u017enih krem (ki ne obstajajo) smo porabili na stotine evrov. <\/strong><\/em><\/p>

Pri izbiri hrane smo bili popolnoma dosledni \u017ee od za\u010detka. Posebno mleko, ki ga je sin pil prvo leto, nas je stalo ve\u010d kot 200 evrov na mesec<\/strong>. Vsaka \u017eemljica in ka\u0161a je morala biti iz oddelka dietne prehrane. Vsak obrok doma je bil vnaprej na\u010drtovan. V vrtcu smo zajtrke, malice in kosila preverjali dvakrat. Tudi pri negi ko\u017ee smo se dr\u017eali vseh navodil in priporo\u010dil. Zjutraj in zve\u010der nismo zamudili niti enega nanosa krem.\u00a0 <\/em><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Atopijski dermatitis<\/strong> ni mali rde\u010di izpu\u0161\u010daj, ki ga nama\u017ee\u0161 s kremo in izgine \u010dez dva dni. Ni kot prehlad, ko odle\u017ei\u0161 par dni in je potem vse ok. Atopijski dermatitis<\/strong> spremlja osebo vsak dan, vsako minuto, vsako dolgo uro pono\u010di. Prevzame tvojo dnevno rutino – zahteva jutranjo nego, previdnost pri izbiri materiala za obla\u010dila in disciplino pri prehrani. Pazi\u0161 na vsak gri\u017eljaj. Vedno si v skrbeh, ko kam gre\u0161, ko se kopa\u0161, ko prespi\u0161 drugje.\u00a0 Bog ne daj, da se spoti\u0161 ali pozabi\u0161 na kremo za son\u010denje.<\/em><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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\u00bbSrbi, srbi\u2026 Mami, prosim nama\u017ei me\u2026\u00ab<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Sama tega nisem ob\u010dutila, sem pa pri svojem otroku videla, kako je \u010de pe\u010de, \u010de boli, \u010de srbi\u2026 Moj mali fantek je v spanju govoril: \u00bbSrbi, srbi\u2026\u00ab in \u00bbMami, prosim nama\u017ei me.\u00ab<\/strong> Pred urgentno ambulanto Pediatri\u010dne klinike je s sebe metal obla\u010dilca in hlipal: \u00bbMami, pomagaj\u00ab<\/strong>, meni pa je od \u017ealosti skoraj po\u010dilo srce. Moj mali fantek je dobil toliko injekcij proti srbenju in kanil z zdravili za pomiritev vnetja, da je imel za vsako obliko injekcije, kanile ali lancete svoj izraz. Ne\u0161tetokrat so mu vzeli kri…<\/em><\/p>

\u010cesa je mene res strah?<\/strong> Da se no\u010di brez spanca pri nas ponovijo; da bi svojega otroka spet videla, kako trpi,<\/strong> ko ga skrbi, boli in pe\u010de ko\u017ea, jaz pa mu tisti trenutek ne morem pomagati. Da mu lahko samo laj\u0161am neznosni srbe\u017e, mu piham na ko\u017eo, jo gladim in bo\u017eam, ga nosim, zibam in mu pojem\u2026<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u017delim si, da bi ljudje razumeli ...<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u017delim si, da bi ljudje razumeli kaj je DIETA in kaj je ALERGIJA \u2013 da ne spra\u0161ujem, kaj je v sladoledu, ker je to moja modna muha, ampak \u017eelim dobiti en sam samcat sladoled, kakr\u0161en koli \u017ee, ki ga bo moj otrok lahko pojedel in ne bo imel alergijske reakcije po njem. \u017delim si, da bi bili VSI ATOPIKI<\/strong> zelo hitro obravnavani pri specialistu, da se \u010dim prej izlo\u010dijo alergeni in predpi\u0161e ustrezna terapija za nego ko\u017ee. Takoj, ob diagnozi, ne \u010dez pol leta!<\/strong> \u017delim si, da bi ljudje razumeli, da je atopikom te\u017eko. Ho\u010dem, da ne strmite in obsojate.<\/strong> Razumite in se zavedajte ter razlo\u017eite svojim otrokom, da je ko\u017ea lahko rde\u010da, ker je bolna, kot je lahko vneto in rde\u010de grlo pri prehladu. Naredite to, ker mene in mojega sina boli, ko drugi otroci re\u010dejo: \u00bbTa je ku\u017een, gremo stran\u00ab in \u00bbZakaj ima\u0161 pa ti tako grdo ko\u017eo, sigurno se lahko kaj nalezem od tebe\u00ab.<\/strong> Srce atopikov je za take besede \u0161e bolj ranljivo kakor njihova ko\u017ea.<\/p>

Eva Balderman Zver, mama atopika<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Eva in Val. Dve \u010dudoviti osebi in izjemna borca. Z nami sta delila svojo zgodbo o atopijskem dermatitisu. Zgodbo, v kateri se boste prepoznali. Vzemite si \u010das, preberite in videli boste, da v tem boju niste sami. Da obstaja lu\u010d na koncu tunela. Evo poznam \u017ee dolgo in vem, da sta se s sinom dolgo […]<\/p>\n","protected":false},"author":4,"featured_media":4916,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[25],"tags":[],"class_list":["post-4891","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-splosno"],"yoast_head":"\n\u010cESA JE VAS NAJBOLJ STRAH? - Atopika<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.atopika.org\/en\/2021\/07\/10\/cesa-pa-je-vas-najbolj-strah\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u010cESA JE VAS NAJBOLJ STRAH? - Atopika\" \/>\n<meta property=\"og:description\" content=\"Eva in Val. Dve \u010dudoviti osebi in izjemna borca. Z nami sta delila svojo zgodbo o atopijskem dermatitisu. Zgodbo, v kateri se boste prepoznali. Vzemite si \u010das, preberite in videli boste, da v tem boju niste sami. Da obstaja lu\u010d na koncu tunela. 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