{"id":4149,"date":"2021-01-09T13:56:27","date_gmt":"2021-01-09T12:56:27","guid":{"rendered":"http:\/\/www.atopika.org\/2021\/01\/09\/project-beneath-the-skin-veronika\/"},"modified":"2021-01-28T12:38:41","modified_gmt":"2021-01-28T11:38:41","slug":"project-beneath-the-skin-veronika","status":"publish","type":"post","link":"https:\/\/www.atopika.org\/en\/2021\/01\/09\/project-beneath-the-skin-veronika\/","title":{"rendered":"Project Beneath the skin – Veronika"},"content":{"rendered":"\t\t
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At Institute Atopika we joined forces with the photographer Ines Krivec from Ines Image Studios<\/strong> in Roga\u0161ka Slatina and embarked on a project entitled \u201cBeneath the Skin.\u201d<\/strong> We invited kids and adults with atopic dermatitis to step in front of the camera and expose their vulnerable and heavily damaged skin. Atopic dermatitis patients are often targets of unwanted commentary and mockery due to the state of their skin\u2014they are perceived as ugly, disgusting, contagious.<\/p>\n

The project aims to pave the way for the understanding that an illness is never \u201cugly\u201d or \u201cdisgusting.\u201d It can be beautiful, too, and rouse feelings of compassion in us. Hopefully, the images will help raise awareness about atopic dermatitis in public and gradually reduce the stigma experienced by the patients. We would like you to meet the people who took part in our project and wanted to be introduced. Today it\u2019s Veronika\u2019s turn.<\/strong><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Veronika, why did you decide to take part in the project \u201cBeneath the Skin\u201d?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Well, I decided to participate at the spur of the moment really. I\u2019m not a person who\u2019d appear in photos much and I don\u2019t know how to pose. I took on the challenge and I\u2019ve had no regrets (when it was all over\u2014laughs<\/em>).<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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What are the things that urgently need to be improved for patients with atopic dermatitis and their loved ones?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Because the illness expresses itself in such diverse and complicated ways, it\u2019s difficult to say what each and every patient would need. Greater transparency with drugs would definitely be useful\u2014I\u2019d like to see discussions on the harmful effects of medication and I\u2019d like the patients\u2019 views to be taken into account; for example, when they don\u2019t agree with the prescriptions of certain creams. There are all kinds of treatment for this illness and it\u2019s good to know what you\u2019re getting yourself into. A lot of people regret their decisions later on.<\/p>\n

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The doctor-patient relationship should be built on respect. This is often not the case. It would also be helpful to raise awareness because people don\u2019t know what we all go through unless they actually live with us. I think that we as patients with atopic dermatitis aren\u2019t decisive enough and don\u2019t know how to protect ourselves\u2014you need a lot of courage to stand up for yourself and not please everyone or do everything at the cost of your own health. A solid, wide-spread knowledge about the illness would be very welcome. And also the possibility to take a sick leave when things get rough (it\u2019s still up to the doctor\u2019s goodwill to let you go on a sick leave sometimes).<\/p>\n

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What will certainly improve our situation is the arrival of new, successful medications and fresh knowledge about the illness. I believe that this is coming.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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What would you say to your younger self if you had the chance?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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I didn\u2019t have skin problems as a child apart from occasional infections. But when the illness really started gaining momentum, I wish I\u2019d known a lot of things that I know now. I\u2019d let little Veronika know that she should take her illness seriously and not wait for it all to resolve itself on its own. I\u2019d tell her to take really good care of her health; it should come before school, work and relationships. And that the illness won\u2019t simply disappear without a certain amount of effort on her part. I would also have liked to see her speak about her illness.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Veronika, how did you gather the courage to pose for the photos?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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I don\u2019t really know. This is something new for me and not at all typical of what I usually do. I went for it and then wanted to get it done in spite of my fear and doubts.<\/p>\n

Veronika, thank you. Thank you from the bottom of my heart. <\/strong><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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At Institute Atopika we joined forces with the photographer Ines Krivec from Ines Image Studios in Roga\u0161ka Slatina and embarked on a project entitled \u201cBeneath the Skin.\u201d We invited kids and adults with atopic dermatitis to step in front of the camera and expose their vulnerable and heavily damaged skin. Atopic dermatitis patients are often […]<\/p>\n","protected":false},"author":4,"featured_media":3955,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[25],"tags":[],"class_list":["post-4149","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-splosno"],"yoast_head":"\nProject Beneath the skin - Veronika - Atopika<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.atopika.org\/en\/2021\/01\/09\/project-beneath-the-skin-veronika\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Project Beneath the skin - Veronika - Atopika\" \/>\n<meta property=\"og:description\" content=\"At Institute Atopika we joined forces with the photographer Ines Krivec from Ines Image Studios in Roga\u0161ka Slatina and embarked on a project entitled \u201cBeneath the Skin.\u201d We invited kids and adults with atopic dermatitis to step in front of the camera and expose their vulnerable and heavily damaged skin. 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